Psychometric properties of self-reported quality of life measures for people with intellectual disabilities: A systematic review

Abstract

This article aimed to review outcome measure instruments of self-reported Quality of Life (QOL) in people with Intellectual Disability (ID). Instruments were identified from five electronic databases (CINAHL, Medline, PsychINFO, Cochrane Library, and ERIC) and handsearching with the following inclusion criteria: (i) the paper was to evaluate the measurement properties of QOL; (ii) measure dimensions/indicators that align with the QOL construct; (iii) the target participants should include an ID population; (iv) the measurement should include self report QOL ratings from the ID population; and (v) the study was published in peer-reviewed English language literature. Nine QOL instruments met the inclusion criteria. The evidence of reliability and validity of the included instruments varied. None of the instruments reported for responsiveness. The Choice Questionnaire had the most evidence supporting its measurement properties while the Maryland Ask Me! Project had the least. Future studies are needed to further refine these instruments.